Lupus, a chronic autoimmune disease, affects millions of people worldwide, being women the most likely to develop it. Despite its prevalence, Lupus is still little understood and, often, poorly diagnosed due to the diversity of its symptoms. The visibility that celebrities such as Selena Gomez and Lady Gaga have given to this disease have been crucial to increase public awareness and demystify its effects.
What is lupus?
Systemic lupus erythematosus (LB) is Lupus’s most common form. It is characterized by an abnormal immune response in which the body attacks its own tissues and organs, causing inflammation and damage to various parts of the body, including skin, joints, kidneys and nervous system. The symptoms vary widely, from fatigue and fever to cutaneous eruptions in the form of butterfly on the face, joint pain and kidney problems. This variability in the symptoms contributes to the difficulty in its diagnosis.
A predominantly feminine disease
Lupus disproportionately affects women, with an incidence ratio of approximately 9: 1 compared to men. Most cases are diagnosed between 15 and 45, coinciding with women’s reproductive years. Hormonal and genetic factors, such as the influence of estrogen and the presence of immunological genes on the X chromosome, can contribute to this gender disparity.
The impact of celebrities on awareness
Selena Gomez, diagnosed with Lupus in 2013, has openly shared her experience, including the need for a kidney transplant due to disease complications. His documentary “My mind & me” offers an intimate vision of his fight against lupus and his impact on mental health. Lady Gaga, meanwhile, has revealed to have a genetic predisposition to lupus, which has helped make the disease visible and encourage research.
The importance of awareness and support
The visibility that these public figures have given to Lupus has been fundamental to disarm prejudices and make awareness about a pathology still unknown to many. On World Lupus Day, held on May 10, the need for greater research, early diagnosis and support to those who live with this disease is highlighted. Each public testimony contributes to a deeper and more empathic understanding of Lupus, promoting a more informed and supportive society.
In summary, Lupus is a complex disease that requires specialized medical care and social support. Awareness and education are key tools to improve the quality of life of those who suffer from it and move towards better treatments and, eventually, a cure.
